The Determined Storyteller in the Battle Against the Cave Monster: Postscript

The Beginning:

The journey began as the DS gazed over the edge of a dark chasm trying to decide whether to ignore its call or take the leap. This was the day my doctor told me I needed a core biopsy for a lump found in my left breast during an annual physical. I had one previously and they are very uncomfortable, which in my opinion is an understatement. The last one was negative and the doctor who viewed this current mammogram said she felt I could wait and see if there were changes next time, but if it were her she would get the biopsy. A friend had just died of breast cancer and I wanted to let my friends know what was happening. The DS decided to leap.

The Traveling Companions:

As the DS plummeted from the cliff side, a friend stepped in to give her the Towel from Hitchhiker’s Guide tho the Galaxy explaining it could become whatever she needed. It became a parachute and acted as bandage and cape throughout the story. This is when I realized the story might be a powerful tool for keeping friends gently abreast (pardon the pun) of the situation without alarming them, to allow them to play a healing game with me, and to help me sort through my feelings and fears in the same way I use story to help others do so.

Throughout the DS’ journey, friends came forward with gifts and blessings including, a platinum breastplate, the Blessed Sword, a magic shield, a basket of glowing orbs, magic torches, an army of angels and themselves. Not only did the DS use these valuable tools, but I loaned them to others as they were needed. One friend whose mother was diagnosed with breast cancer was loaned the shield, another who faced a difficult situation was loaned the sword and so on.

The Call of the Hero:

The hero is reluctant, does not want to be a hero or take on a difficult task, only an adventurer thrives on this. But the DS knew what must be done. I missed my friend’s burial to get a biopsy on January 29th. I decided this was the best way to honor her life. I can only hope her family felt the same. Her name became the DS’ rallying battle cry "Rannvieger!"

This day was the same day as my sister’s birthday and also a horrible day for my family as my father was rushed to the hospital. The DS was drawn from her own calling to try and save her father. Bands of angels and her army went with her as the powers of darkness tried to distract her from the monster she must later face, perhaps to allow him to gain strength in her absence. She fought valiantly to save her father from their grasp, once to actually have believed him safe, but alas she failed. My father never recovered from his illness. He died March 13th, just three days after my surgery.

Nemesis:

My diagnosis came back positive for cancer on February 3 and the DS now heard the monster’s roar from inside a cave "I am Cancer and I will destroy you!" She now knew the monster’s name which could aid her in destroying him but it was name feared far and wide. I knew I had to talk about this journey because I felt cancer was so scary it had to be brought into the light of day to understand and defeat it.

Mentors:

I was fortunate to have a nationally renowned surgeon in the field of breast cancer, Dr. Stephen Edge. The DS entered the cave and met the Healer Edge who made her lay prone near a healing pool (my scans and tests) and gave her assistance in fighting the monster. He was my surgeon on March 10th and the surgery vanquished the monster beautifully. The delays caused by missed appointments to care for my dad did not allow the creature to grow beyond Stage 1 and .9cm.

But The Edge told the DS that she would have to face yet one more trial. She would need to decide whether to enter the Cavern of Fire (chemo) or just the Cavern of Lightening (radiation), which was a must. After meeting with Dr. Edge (surgeon), Dr. Levine (medical oncologist) and The Khan of Lightening (Dr. Kahn radiation oncologist) I discovered that there would be only a 2-3% benefit to having Chemotherapy. Of course I didn’t want to lose my hair but friends had already offered help with hats and the hospital has a resource center to help. I had already become determined to be the "Crazy Hat Lady" but the effects of chemo on the rest of my body was scary, to be honest.

The Finale:

After discussing the doctors’ recommendations and statistics with Thomas, we both agreed that a 2% benefit was not worth the trauma, especially with no cancer found in the surrounding tissue or lymph nodes. It would have been a completely different story had the DS not been given a choice, but she was. She entered the Cavern of Lightening on May 3 and was not heard from after that until she emerged. This is very significant because although the hero has traveling companions, there comes a time when she must face the journey alone.

Entering the Shadow Lands, prologue:

On September 10, 2009 our 18 year old dog Merlin died. He’d been sick with the effects of age for a couple years. Thomas had been carrying him up and down stairs and our living room had been a dog kennel with drop cloth and sheets on the floor. We knew it was only a matter of time but when we found him nearly unconscious one morning, it was unbearably sad. We rushed him to the SPCA and there surrendered him at their back door to be put to sleep. My heart was broken. He was such a large dog and a huge presence in our home and in our lives. He went everywhere with us. I am still crying as I write this but there really hasn’t been time to finish this mourning.

November. I was bringing the larger pond fish into the basement tank for winter when the oldest one, a koi named Big Fish decided to take the "Big Journey" on his own. This is a phrase given to me by a friend and I love it. It helped me feel better, for you see when I went outside to get another fish, Big Fish pushed through the screen covering the tank and landed on the basement floor. By the time I came in it was too late. I blamed myself for not placing the screen tighter. I had raised this 18" fish from a 2" fish and he was 15 years old. I know it probably seems odd to put so much importance on a fish in the light of all else that happened after that, but at that time it was significant. He was the largest and oldest and actually used to eat out of my hand. Another big presence in my life was gone and it was a death I could have avoided.

I now look back and realize that Big Fish’s passing was a harbinger of what was to come. I would be stripped of all the big presences in my past life, but my relationship with Thomas would become stronger than ever.

December 12, my mother died. Like Merlin, my mom had been ill for some time. She was on oxygen but a strong willed woman who wanted to keep living. She was frail however, and I had been saying goodbye to her for three years. I was ready for her passing. Of course, I mourned her death but it seemed easier to accept. I do miss her very much now and cry on and off, especially at those moments when a Mommy is needed. I have really come to understand the different roles Moms and Dads play in our lives, or at least in a woman’s life. I imagine it might be very different for a man.

I thought my sorrows would end here, and I do wish they had but when faced with the unexpected challenges of cancer and my dad’s illness, I did exactly what my parents and life experience raised me to do, stepped up to the plate as the Determined Storyteller.

Never in my wildest imagination did I expect to get cancer or lose my "big guy", my best birthday present, my dad. Still mourning for Merlin and Mom, I faced the greatest sorrow of my life, at least since losing my sister Pam at age five. When dad died I thought my world would end, and in many ways it did. It made me the oldest in the immediate family and placed me in the awkward position of being in charge of settling Dad’s affairs. I became the outcast and the outsider, and my heart felt like a stone.

After the long sleep, a Transformation:

About halfway through treatment, I was feeling pretty beaten down by everything that has happened to me. I lived in a kind of fog. It is hard to describe but it was like going through the motions hour by hour, day by day, looking for joy but just getting along. I was fortunate to have many wonderful friends who supported me and Thomas who was there all the time. They broke through the fog often, sending light and love to that shadow land, but still I felt like I was living a half life. Then one day it happened, Creator sent an angel by way of a fellow radiation patient named D (to protect her identity).

I wrote a blog about my angel and everyone has wondered what she said. Now I will tell you. It may seem trite and insignificant to you but at that moment of my need, it was huge. It was like a brilliant beacon in the darkness that burned away the fog, because I was feeling like a worthless being. I had given up important healing work because I myself needed healing. I had been called names and was starting to believe them because I was too weak to fight anymore. It is so hard to explain the pain I felt at that time.

One day D came around a corner and out of the blue, having never really spoken to me, looked into my face and said "There is a glow around you. You are such an amazing person.

She herself had been very ill for the first few days of her treatment which is why we really hadn’t spoken. When she said those words to me it was like a veil was lifted and I felt that light on my face. I acknowledged the power of this, of being kind to others never knowing when they may need it most. We spoke about this the following day and she told me how I made her feel wonderful too. We hugged and held hands.

So without knowing it, we had helped each other. Her illness lifted and I have never again felt that fog. The DS was shown her future in the Healing Pool. She would emerge in the White Robes of Transformation.

Journey’s End.

We, the DS and I, emerged from the Cavern of Lightening on June 23, 2010. There was an earthquake 250 miles north in Quebec just as I entered for the final treatment. I never felt the shaking but when I called home to tell Thomas I had finished he answered the phone.

"Wild Ride huh?"
"What?"
"We’re not talking about the same thing are we."
"No I was calling to say I just finished my last treatment."
"Congratulations! We just had an earthquake."

What a coincidence that is! And later I discovered that today, June 24, my ReBirthday is also the Nativity of Saint John the Baptist. I believe these are more than just accidents or coincidences, I believe they are Signo de Deo (signs from God) just as Big Fish leaving for his Big Journey was a sign.

Aftermath:

The hero finishes the journey and rebuilding takes place. Armies return to their homes where they find they too must rebuild. Weapons and armor are cleaned and laid to rest. Wounds are tended. Families reunited. But the Hero is changed. While others experience the joys of reunion, there is a melancholy surrounding the hero. She must come to understand this feeling of change, must learn to accept it and figure out its meaning in order to become whole again.

After the celebrations are over, after the feast is ended, the hero will retreat to a place where she can recognize herself again. The DS has spent so much time in the shadow lands, she is not certain what to do with the light.

She will continue to fight for right and against the dust bunnies of the world, but in what capacity? What will her life be now that the largest battle of a lifetime is finished?

The Determined Storyteller will have the courage to face other monsters but she wonders for the time being if she will just go through the motions of living or really take on life with passion once again.

I am sure the reader knows the answer already, but for now the DS, emerging from the cave in the White Robes of Transformation, has the glow of ecstasy in her eyes and has not yet come to an understanding of the path that waits before her. Yet, I have faith based on previous experience that she will find her way and follow it and that the path will take her to some place where the table has already been set. She will eat and she will grow, and she will be what all of her life has brought her to be, The Determined Storyteller.

Acknowledgments:

I wish to thank the friends who have traveled this journey with me and who have given their support, light, and prayers along the way. I hope you realize after reading this Postscript to the story, how much you really have meant and how much of it you wrote for me. And to Thomas, there is little I can say about your strength and love except that you are my shield, my armor, and my life’s blood. Thank you. And thank God.

Trying to Understand How People Become Disappointed

I have been working with At-Risk Youth since 1994 and the following is also a prt of that work and the book I am writing about mentoring at-risk youth through story.

In my work with at-risk youth, I have developed four principals for successful negotiation. They are Judgement, Expectation, Trust/Respect, and Presentation. These are the things we take to the table when trying to reason with others and also when trying to understand our relationships with them.

Expectation: What do we hope for ourselves, the other person, and the relationship?

I think it is safe to say that most of us hope not be hurt in any relationship and that the relationship will be long-lasting or at least successful. But what we hope for in the other person is really the tipping point. We do seek others with common interests, viewpoints and even the same ethics, but what do we do when we have not chosen the relationship, such as in a family? The other person may have been raised with similar beliefs and traditions, but it may be that over time they have developed their own ideas and customs, even gone far astray of what was traditionally taught in the family. In this case, do we throw the "baby out with the bath water?" How do we cope within these more complex relationships? What happens when we discover after many years of being in a relationship, the other person has changed for better or for worse? It’s a difficult question.

So where to begin. Well, it may be simpler than you realize. Begin with safety first. Are you safe, physically, mentally, emotionally, and even economically? If yes, then the next step is to begin with you. Begin with how you think, not how the other person acts. In other words change what you can control.

The first thing we need to do when we are learning to dance with another person is learn the dance steps for ourselves. Make sense? Getting along in a relationship is like dancing. You learn the steps and then sometimes you move together, sometimes you dance the same steps and sometimes you move apart, yet the movement make up a beautiful full and complete whole. Would you expect anything else from dancing? So why expect anything else of your relationship.

Allow your dance partner the space they need to be who they are. Don’t expect anything else of them and you won’t be disappointed. The exception is when dealing with someone who just doesn’t try to keep up or move with you. In this case it may be necessary to stand off and watch them dance from a distance until they move toward you, leave the dance floor, or just get another dance partner. But in most cases, if you approach a safe relationship without expectation, your partner will approach you in that way too.

This doesn’t mean you won’t find sadness in those times you drift apart. You will because you are a caring loving individual. But you will also find great joy in those times you come together, if you make up your mind that you will be joyful and focus on those positive moments. Attitude makes a big difference.

*Note. Expectation in this context does not mean the same as standards. We should set high standards for our success and that of our children. This acts as motivation and does not have anything to do with our acceptance of their failures. People fail. People learn. People can improve, but the definition of improvement is what we are talking about when we discuss expectation in this article. Does improvement mean that another person is only acceptable or successful to us if they do as we do, do things the way we would, think like us? We need to weigh the value of our lives with or without others in terms of what we are willing to have or sacrifice for that relationship.

More on Judgement, Trust/Respect and Presentation in the next posts.

Balance by Spencer Pope

My great grandfather, Spencer Pope, was an entrepreneur in New Berlin, New York and wrote poetry and prose for the New Berlin Gazette. I have the full collection of his writings and opened to find the following titled "Balance."

Balance by Spencer Pope, May 25, 1933

The Sun was made and sheds its heat and light upon the earth;
But its continued intense radiance will sere and blast
the very life its power gives, and so the clouds are hung underneath
to veil the earth and protection give to life.

We are given pleasures and joys in our short human lives,
Which like the Sun can sere and stunt us from ambition’s aims
And so the clouds of grief and pain are interposed with them
To bring us back to stern realities and more sane thoughts.

The raven’s song is dismal croak, the meadow lark’s a song of joy
Continued, either one can pall, yet both have place on earth.
There’s things that crawl and things that fly, but if all crawled or flew
Congestion would obtain and rational balance be gone.

God’s balance is not upon one single thing, but as a whole
It’s not ordained that one should know or do all things in life
But what is given us to do, we should strive to do well;
That there be some to learn and some to teach, is in God’s plan.

And those that now can teach are those who one time had to learn.

My Soul's Home

The Catskill area is where my family is rooted. My great great great great great grandparents settled there from my mother, father, and biological father's families. These roots are very deep and many family members still live there or are buried in the region. Every time I work there, it is like going home, comfortable, soothing, real. I get to return there to work June 12 and 14.
June 12: Oneonta Storytelling Festival featuring Laura Simms, Marni Gillard, Lorna Czarnota, and Susan Trump.
http://thedailystar.com/communitynews/x433575145/Area-storytellers-sought-for-festival/print

My recently deceased mom and dad met at the Oneonta Hotel. The story goes that Mom was giving out kisses and my dad bought one for a dollar. I don’t doubt that at all since Dad used to carry a pocket full of nickels as a young man and bet the girls a nickel he could kiss them without touching them. I suppose the dollar had to do with inflation, and I am sure my mother was worth much more than that.

The hotel later became a bank and I don’t know what it is now, perhaps vacant. The first time I told stories with the Oneonta storytellers, I recall visiting what had been the hotel and touching the exterior wall just to be able to say I had been there, in that place where my parents met.

Mom and Dad's first photo together.

After meeting the Oneonta tellers for the first time, I realized what wonderful people they were and was invited to return many many times to not only tell with them, but teach them about storytelling. They became my family. As with many things in my life this year, I think this is their farewell festival, not enough young tellers to carry on the tradition and the work of running and organizing a guild.

It maybe no real coincidence that I will return there now that my parents are gone, a sad and fitting end of their journey, and the happy ending for the Oneonta Storytelling Center too.

I will also present Wild and Wooly Tales on the morning of June 14 at Downsville Central School and my dear friend and storytelling partner Merri Lee will join me in the afternoon to present "Letters Home, Stories of the North and South" at Unadilla Elementary School in the afternoon.

The following is a little history of my roots which spread across the region from Oneonta (where my mom, myself and my deceased younger sister lived for a while when I was just a toddler) to Delhi, Walton, Morris, Unadilla, Laurens, and New Berlin.

Cobb/VerValin my mother’s side of the family: Mom was born in Unadilla and may even have attended the school where Merri and I will visit on the 14th. My grandmother’s family VerValin has a small cemetery on a back road in Unadilla. I found it mentioned in the archives at the Cooperstown Historical Library and visited it a few years ago. The small cemetery is located in a farmer’s field and is surrounded by an old wrought fence with the name VerValin on the gate. There were four stones there but trees had grown up through everything and it was sadly in need of work and may not survive. There is no telling what condition it is in now. The farmer kept a path mown to it but that was years ago.

MacDonald/Beers : my dad’s side of the family hails from Delhi, Walton, and Beerston. Yes, the town is named after them. Pretty cool huh? Personally, I know little about the Beers. I think my dad’s mother was a school teacher.

I know more about the MacDonalds. They arrived in the early 1800s at Fayetteville, North Carolina from Dunbarton Scotland. They moved north and settled in the Delhi, NY region where years later, my dad was born. I’ve never had the chance to work in his old school or in Walton either, but spent much of my childhood there at memorable family reunions, clambakes, and Christmas’. My deceased sister is buried in the Walton cemetery with my dad’s mother and father. Her name was Pamela Irene and she died at age 3 when I was just 5 years old.

There is one Beers uncle, Neil, who fought in the American Civil War.

Southern/Pope my biological father’s family: The Southern’s settled in the areas of Morris and Laurens and became farmers. I forget which great it was but it was at least four generations ago that one of my grandfathers brought the first long haired, bred sheep from Sheffield England to Otsego County. I know we have Sheffield roots but have not been able to trace them to England.
The Popes settled in the area around New Berlin, NY. I know nothing beyond my great grandparents history but that is very rich.

My great grandfather Spencer Pope was an entrepreneur in New Berlin. At one time he opened the first bicycle shop and later ran a grocery. His wife, my great grandmother, Hattie was a milliner and had a shop on the main street. I don’t know where Hattie is buried but Spencer is in the New Berlin cemetery. His grave is shown on a cemetery map but there is no headstone. I may remedy that as Spencer was a writer. He wrote poems and stories for the New Berlin Gazette for years. I have a bound notebook of all his writings that a local farmer had gathered and published. Their only daughter, my middle namesake, Theral became a dressmaker.

One great grandfathers and an uncle who fought in the American Civil War are buried in the Morris Cemetery, at least that is the war I recall. I know there was a grandfather who fought in that war as I have a photocopy of his letter to his wife from the hospital where he recuperated from a wound. Theral is buried in that cemetery also. I never found her grave.

So you see, my history is full of people who influenced me, though I never knew most of them. There were poets and storytellers, teachers and entrepreneurs, shepherds, a milliner and a dressmaker, all things I have done or aspired to do in my life. And the Catskills really are home to my soul.

I used to work there often but not in the past two years. I am so excited to be going home once more. I will have Sunday between programs to try to find the old cemetery in Unadilla again and to visit my sister’s grave and tell her of her parents’ recent passing, although I am sure she is with them now.

There are cousins scattered everywhere in the area and I have not maintained contact with them. One aunt and uncle still live in Walton. Many others have moved to warmer climates, including four half-sisters and two half-brothers. Many others have passed.

But their memories and stories linger. They cling to walls of old hotels, stone walls separating farmer’s fields, and brooks that wind from one side of the road to the other. They live on in the smell of oiled dirt roads, and old wooden general stores, and in this storytellers dreams and words. For you see the very first story I recall telling, was told when I was 10 years old, sitting on the porch with my cousins at their home in Andes, NY, while looking at the foothills of the Catskill Mountains.

As long as I draw breath, I will keep them alive.